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Welcome To The Community Of NephcEurope!

On behalf of all patients, mothers and fathers of the new European patient-organization& fundraising foundation NephcEurope, we would like to welcome you on our website!

 

NephcEurope is a European wide working patient-organization and fundraising foundation in the field of Nephrotic Syndrome.


An organization which is built by parents and patients in order to provide service and support to other patients or their parents, not on a national basis but on a European basis!

NephcEurope is open for patients coming from all over Europe to share their experiences and worries being confronted with this disease.


A fundraising foundation that would like to stimulate the research for the cause
and possible cure of Nephrotic Syndrome.

 

 

 
Read more...
 
Prognostic Value of Risk Score PDF Print E-mail

Prognostic Value of Risk Score and Urinary Markers in Idiopathic Membranous Nephropathy

 

Background and objectives Accurate prediction of prognosis may improve management of patients with idiopathic membranous nephropathy. This study compared the Toronto Risk Score and urinary low-molecular weight proteins. Read more...

 

 
Severe intestinal oedema due to nephrotic syndrome PDF Print E-mail

 

Nephrotic syndrome is defined by oedema, proteinuria (>3 g/24 h) and hypoalbuminaemia (<30 g/l). Nephrotic syndrome may occur as a result of primary renal or systemic diseases, commonly diabetes mellitus in the adult population. The cause of the oedema is not completely understood, but may result from loss of...

Read more...

 

 
Boek Achtbaan van gevoelens PDF Print E-mail
boek achtbaan

 
Clinical Features and Outcomes PDF Print E-mail

Clinical Features and Outcomes of IgA Nephropathy with Nephrotic Syndrome

 

Background and objectives Nephrotic syndrome (NS) is a rare manifestation of IgA nephropathy (IgAN). Clinical characteristics and long-term outcomes of this condition have not yet been explored.   Read more....

 

 
Voor wie ons eerste radio interview heeft gemist... PDF Print E-mail

NephcEurope on air...

 

Lieve allemaal!

 

Wij, het bestuur van NephcEurope zijn er trots op dat we ons eerste radio-interview hebben gegeven over onze stichting en de zeldzame aandoening waar we voor staan, het Nefrotisch Syndroom!

Voor degene die het radio-interview nog eens wil beluisteren, klik dan op de groene tekst hieronder!

 

Click here for the interview

 

compleet fm 009 klein

 

De uitzending is tot stand gekomen dankzij CompleetFM.

Wij willen graag het hele team van CompleetFM bedanken voor hun hulp en voor een gezellige dag in Noord-Scharwoude.

 

Jose, Bart & Marieke

 

 

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My Albusticks are covered by my insurance..
 

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